Docs reviewed brain scan and found an area of concern where the temporal lobe sends information to a "drain pipe" looking hole where signals are sent to my spine. They measured the opening before and after surgery. The opening was 0.083 cm and now, in the interest of making sure it doesn't close and cause a siezure, I'm on 1,000 mg per day of Levetiracetam.
They say that I am a medical "oddity" and my case should be in a book.
They've more or less medically retired me and I'm already recieving my retirement check every month. More later.
I've moved from 95% die within 2 to 12 months, to 5% survive more than 15 months and then 2% live a long life.
Tim
Saturday, July 24, 2010
Sunday, June 20, 2010
I'm in the 5% group now.
95% of the glioblastoma multiform cancer victims die within 3 to 12 months. Remember last year on Father's Day when I had the wreck and they found the tumor? Well, today made a year for me. Now, I'm off the 95% list and on the 5% list. Looks like I'm gonna be around a long time.
I had a headache and, as per doctor's orders, I reported to the emergency room this morning. I ended up having an emergency catscan to see what the problem was and I'm happy to announce that it appears that there's been no change at all and another tumor wasn't the cause of the headaches. Kristin and Tim Jr thought it might be my new script for eyeglasses. If you've ever changed, you'll know what I'm talking about.
Oooooohhhh Raahhhhhhhhh.
Sr.
I had a headache and, as per doctor's orders, I reported to the emergency room this morning. I ended up having an emergency catscan to see what the problem was and I'm happy to announce that it appears that there's been no change at all and another tumor wasn't the cause of the headaches. Kristin and Tim Jr thought it might be my new script for eyeglasses. If you've ever changed, you'll know what I'm talking about.
Oooooohhhh Raahhhhhhhhh.
Sr.
Saturday, June 12, 2010
Rail yard in Leesville
Thought I'd attempt to send a picture of the rail yard in Leesville. Don't know if this is going to work but here's a shot at it. This is just a couple of miles from Ft. Polk where I took basic training.
Sr.
Sr.
Tuesday, June 1, 2010
Tim Jr's Grandfather
I went to the nursing home yesterday to visit Tim Jr's grandfather. I bought him a dvd player so he could watch dvd's that Tim Jr bought him. They cover the "Pacific" theatre where General McGovern served when he was a fresh Lt in the Army. You should have seen his face. He was beaming.
I bought a card for him that said: "To a great American and the best grandfather on the planet". It did my soul good to see that face light up and that big grin! He's a cool guy who's cool index is off the chart.
Nothing better than making a World War II vet smile like a kid at a candy store!
Tim Sr.
I bought a card for him that said: "To a great American and the best grandfather on the planet". It did my soul good to see that face light up and that big grin! He's a cool guy who's cool index is off the chart.
Nothing better than making a World War II vet smile like a kid at a candy store!
Tim Sr.
Monday, May 24, 2010
Half a brain photo
How's that for a picture change? Chemo and radiation will sure put some "ugly" on a guy. Despite the brain surgery, from the front, you can't really tell there is a dent in the side of my head. Joey says that "chicks dig guys with scars" so I guess it will all work out in the end.
I am doing really well in the sick department. No stomach trouble at all. I have these follow up appointments at the VA that take some time but that's a heck of a lot better than doing the chemo boogie!
I lost my right eye and I have an eye appointment at 8 am this morning so I gotta hit it. I have a head appointment Wednesday that I understand will last all day long. Don't have a clue why it will take all day to get r' done, but I'm being very, very careful to follow their instructions to the "T" and not missing an appointment. Can not afford to lose my benefits as a result of not complying with their orders so I keep doing exactly what they say.
I moved my motorhome 120 miles south of Shreveport and am doing my "rehab" down there. You can google "Toledo Bend Dam" and kinda get an idea of the terrain.
I get to be surrounded by all my buddies, stay mentally engaged and play the stone yard game, too. I like it a lot and it does wonders for a guy's self esteem to know that he's not a complete invalid even though the Chief of Staff of Oncology tells me that my brain scan indicates: "There's nothing up there". My big brother told me that he could have saved all that catscan money as he could have told the Doc that there hasn't been anything up there for years. Oh well.
I am doing really well in the sick department. No stomach trouble at all. I have these follow up appointments at the VA that take some time but that's a heck of a lot better than doing the chemo boogie!
I lost my right eye and I have an eye appointment at 8 am this morning so I gotta hit it. I have a head appointment Wednesday that I understand will last all day long. Don't have a clue why it will take all day to get r' done, but I'm being very, very careful to follow their instructions to the "T" and not missing an appointment. Can not afford to lose my benefits as a result of not complying with their orders so I keep doing exactly what they say.
I moved my motorhome 120 miles south of Shreveport and am doing my "rehab" down there. You can google "Toledo Bend Dam" and kinda get an idea of the terrain.
I get to be surrounded by all my buddies, stay mentally engaged and play the stone yard game, too. I like it a lot and it does wonders for a guy's self esteem to know that he's not a complete invalid even though the Chief of Staff of Oncology tells me that my brain scan indicates: "There's nothing up there". My big brother told me that he could have saved all that catscan money as he could have told the Doc that there hasn't been anything up there for years. Oh well.
Sunday, May 23, 2010
Picture posting
If I could figure out how to change the photo on the front page of the blog, I would do it. Sorry.
Doing very well so far. No barforama for roughly five weeks. Feeling super good about that. Have eye doctor appt tomorrow for new glasses. Lost my right eye completely so there will be no more flying for me. Not that I was doing any anyway but at least I had the ability to go fly if I wanted to.
Will let ya'll know whats up as time goes on. Sorry it's been a while since I posted but I've been in Leesville and haven't had wifi at the camp.
Tim Sr.
Doing very well so far. No barforama for roughly five weeks. Feeling super good about that. Have eye doctor appt tomorrow for new glasses. Lost my right eye completely so there will be no more flying for me. Not that I was doing any anyway but at least I had the ability to go fly if I wanted to.
Will let ya'll know whats up as time goes on. Sorry it's been a while since I posted but I've been in Leesville and haven't had wifi at the camp.
Tim Sr.
Tuesday, May 4, 2010
Cancer Free
Yesterday's catscan report shows me to be cancer free. I can't tell you what a relief that has been for all of us especially my son and my family. Thanks for all the support and well wishes. Will let you know what the next inspection looks like and what I have to do to stay ahead of this.
Sr.
Sr.
Subscribe to:
Posts (Atom)